Preliminary Data from the BISON-PRO Lymphoma Pilot

Dear BISON-PRO participants,

On behalf of the entire BISON-PRO research team, we want to extend our deepest appreciation for your participation in our important study of long-term quality of life among individuals diagnosed with blood disorders. 

Since the study opened in late 2023, we have hit some major milestones, thanks to you.

• enrolled over 50 patients onto the study
• measured quality of life and symptoms for up to 6 months after diagnosis
• received a research grant from the University of Colorado Cancer Center to help support and expand the study 
• opened a new website (bison-pro.org) that will enable us to share future research findings with you and fellow researchers

In addition, we wanted to share with you some initial findings, which have enabled us to learn more about how blood disorders affect multiple aspects of quality of life and symptoms. As you can see in the above figure, we have learned the following:

• In a brand new program that started in 2024, our bone marrow transplant psychology team will be using the information collected from the BISON-PRO study to help improve support people who are undergoing these advanced treatments.

• Individuals who are managed with active surveillance (also called ‘watch and wait’) generally have better quality of life, including physical, mental, and social health, than the general population of people who are not diagnosed with blood disorders.

• Symptom burden is highest among individuals who are undergoing transplant or CAR T-cell therapies, and we are hoping to learn more about these treatments impact symptom burden over time.

If you have any questions or comments about the above, or any suggestions about the BISON-PRO Quality of Life Study, please email us.

Thank you again for your support and your collaboration.